Allied Health Professionals Day | Tuesday, 7 February
All timings of activities and sessions will take place in GMT (Greenwich Mean Time / CET–1)
| time | title |
|---|---|
| 12:00 – 13:00 | Registration and lunch |
| time | session | person | |
|---|---|---|---|
| 13:00 – 13:55 | JOINT SESSION: NEW THERAPIES: How it affects the role of an AHP | ||
| 13:00 – 13:15 | Welcome Short introduction of all new therapies | Robert Klamroth | |
| 13:15 – 13:55 | Panel discussion with members of the Multidisciplinary Team | Chair: Lotte Haverman Martin Scott (Haematologist) Cathy Harrison (Nurse) Anna Wells (Physiotherapist) Grainne O’Brien (Psychosocial Professional) | |
| time | session | person | |
|---|---|---|---|
| 14:00 – 15:00 | SESSION 1 Non-Factor Replacement | Maj Friberg Birkedal | |
| 14:00 – 14:05 | Introduction | Nanda Uitslager | |
| 14:05 – 14:25 | Pharmacology of non-factor replacement therapies | Marlene Beijlevelt | |
| 14:25 – 14:40 | Nurse’s experience of changing patient to non-factor replacement treatment regimens | Tami Barazani | |
| 14:40 – 14:50 | Nursing challenges of new therapies | Renester Fenton | |
| 14:50 – 15:00 | Q&A | ||
| 15:00 – 15:15 | Break | ||
| 15:15 – 16:45 | SESSION 2 Inherited Platelet Function Disorders | Nanda Uitslager | |
| 15:15 – 15:40 | Overview of platelet function disorders | Malin Axelsson | |
| 15:40 – 16:00 | Glanzmann’s 360 study | Kate Khair | |
| 16:00 – 16:10 | Q&A | ||
| 16:10 – 16:35 | SLAM | ||
| 16:10 – 16:16 | Adherence, and Quality of Life In Patients With Haemophilia A, Haemophilia B and Von Willebrand – A National Cross-Sectional Survey | Cecilie Maria Lüthje Clausen | |
| 16:16 – 16:22 | Nurse Led Screening Clinic for New Referrals | Renester Fenton | |
| 16:22 – 16:28 | A Nurse Led Education Care Pathway and Training Program for Paediatric Patients With Severe FVIII Deficiency In Ireland | Caitriona Ferry | |
| 16:28 – 16:34 | Subcutaneous Desmopressin as an Alternative to Intravenous Desmopressin | Femke Yspeerd | |
| 16:35 – 16:45 | Q&A | ||
| 16:45 – 17:15 | Break | ||
| 17:15 – 18:55 | SESSION 3 The evolving role of the European Nurse working in bleeding disorders | Mary Kavanagh | |
| 17:15 – 17:35 | The future of the nursing profession | Paola Di Giulio | |
| 17:35 – 17:45 | Standards of Bleeding disorder Care for the future | Greta Mulders | |
| 17:45 – 18:45 | Haemophilia Nurses Perception of our Role Workshop – Introduction – Groupwork | EAHAD Nurses Committee | |
| 18:45 – 18:55 | SLAM Prize presentation | Mary Kavanagh Nanda Uitslager | |
| 19:00 – 21:00 | AHP Day Networking Platform | ||
| time | session | person | |
|---|---|---|---|
| 14:00 – 15:00 | SESSION 1 Important clinical topics | Marie Katzerova | |
| 14:00 – 14:20 | Patient or carer education/therapeutic education | Nathalie Grinda | |
| 14:20 – 14:40 | Monitoring the recovery of joint bleeds | Floor van Leeuwen | |
| 14:40 – 15:00 | Pain assessment in the current clinical set ups | Sarah Whitaker | |
| 15:00 – 15:30 | Break | ||
| 15:30 – 17:00 | SESSION 2 Experience and change | David Stephensen | |
| 15:30 – 15:50 | Quality of Life and response to physical activity Clinician’s perspective – adults | Mark McGowan | |
| 15:50 – 16:10 | Quality of Life and response to physical activity Clinician’s perspective – children | Paula Loughnane | |
| 16:10 – 16:30 | Quality of Life and response to physical activity Patient’s perspective | Clive Smith | |
| 16:30 – 17:00 | Q&A/facilitated discussion with audience | ||
| 17:00 – 17:30 | Break | ||
| 17:30 – 19:00 | SESSION 3 SLAM (Six 10-MIN PRESENTATIONS) | Magnus Aspdahl | |
| 17:30 – 17:40 | Psychophysical Assessment of Pain in Adults with Moderate and Severe Haemophilia: A Cross Sectional Study | Anthe Foubert | |
| 17:30 – 17:40 | Comparison of Fitbit-Measured and IPAQ-SF Self-Reported Physical Activity in Young People with Haemophilia | Ruth Elise Dybvik Matlary | |
| 17:50 – 18:00 | Using an Exercise-Based Telerehabilitation Approach to Manage Chronic Pain in People with Severe Haemophilia: A Mixed Methods, Feasibility Study | Paul Mclaughlin | |
| 18:00 – 18:10 | Development of A Practical Statement for Primary Care Physiotherapists: Key Questions & Outcome Measures | Johan Blokzijl | |
| 18:10 – 18:20 | Discordance Between Joint Pain and Imagery Severity in The Ankle Joint and The Contributors of Lower Limb Activity Limitations in Adults with Haemophilia: A Cross-Sectional Study | Valérie-Anne Chantrain | |
| 18:20 – 18:30 | Consensus on Outcomes of Physical Function and Activities for Persons with Haemophilia: Results from The IPOP Study | David Stephensen | |
| 18:30 – 18:50 | 20-min Q&A | ||
| 18:50 – 19:00 | Scoring of the SLAM presentations by the audience | ||
| 19:00 – 21:00 | AHP Day Networking Platform | ||
| time | session | person | |
|---|---|---|---|
| 14:00 – 15:00 | SESSION 1 We care for Women! Psychological consequences for carriers and Women with Bleeding Disorders | Lotte Haverman | |
| 14:00 – 14:20 | A personal journey; from girl to woman | Manon Degenaar | |
| 14:20 – 14:40 | Girls transitioning to adulthood: do they get the necessary support? | Gloria Rooney | |
| 14:40 – 15:00 | A case study of psychotherapeutic treatments of haemophilia carriers with adjustment disorder | Petra Buckova | |
| 15:00 – 15:30 | Break | ||
| 15:30 – 17:00 | SESSION 1 (cont.) We care for Women! Psychological consequences for carriers and Women with Bleeding Disorders | Lotte Haverman | |
| 15:30 – 16:00 | Qualitative studies on carriers, bleeding disorders, and sexuality | Tessa van Gastel | |
| 16:00 – 16:30 | Effect of Gene Therapy on carrier women | Ana Torres Ortuño | |
| 16:30 – 17:00 | Experience of running Peer Groups | Christina Burgess | |
| 17:00 – 17:30 | Break | ||
| 17:30 – 19:00 | SESSION 2 Support Groups | Gaby Golan | |
| 17:30 – 19:00 | Workshop session on Support Groups | ||
| 19:00 – 21:00 | AHP Day Networking Platform | ||
